Tuesday, August 19, 2014

The Window

Years ago, when I was dealing with a family member with mental illness, I remember a medical professional telling me that the "window of opportunity" for being able to reach him was closing rapidly.  It was a metaphor that would stay with me.

Last year my father died and my 89 year-old mother came to live with me.  She was in shock -  confused and grieving (my father's diagnosis and death took place in one short month) .  She was, herself, not in the greatest physical health.  At that time, I thought there might be a way for us to heal what had been a troubled relationship.  I understood all the dimensions of the situation - her enormous needs, my needs, and her cantankerous and negative personality.  Yet, I had hope.  I was her only child and she was my only mother.  One can always hope.

 So the window, I thought, was open a bit and some positive energy might flow through.

Mom and Me just days after Dad died
During the ensuing months, there were light moments, happy moments, and time shared with family.  Then one of the worst winters in my memory set in, and we found ourselves confined and no way for mom to get out.  In hindsight, it was probably the emotional slope she was seeking to slide down. 

By spring, when it was time for us to get out and enjoy the world again, she had slid down the slope more than halfway.  There was no more lunch at T.G.I. Fridays.  There was no  more coming to the dinner table and sharing meals with us.  Her comprehension of where she was and who I was and who anyone was (except Lily, the nurse who is with her everyday) had become erratic.  Sometimes she would call my name, sometimes my dad's and sometimes those of her deceased siblings.

I understand that a shock of monumental proportions, like the death of a partner you'd shared your life with for almost 68 years, can hasten dementia and its associated physical manifestations.

So, the window has almost closed.

Now, almost one year after the death of my father, she is bedridden and doesn't want any visitors.  She refuses all assistance to move, and only accepts assistance to eat.   She can only focus briefly on anyone or anything and signals her disengagement by closing her eyes.  You are dismissed.

I know that she only wants to have her life back the way it was.  She asked Lily to take her home, to which Lily replied, "You are home."  But this has never been her home, in spite of all our efforts to make it comfortable and homey.  Her home was with my father, and when she closes her eyes, she sees him and home.

This makes more frustrated than sad.  I do mourn the loss of any thread of a relationship we might have developed.  Spending a few days with my partner's 90 year-old mother made me understand only too clearly how needy I am for that relationship.  But I'm frustrated that a life ends this way and there seems to be nothing one can do about it, but wait.

We have windows, though, in all our relationships - with our spouses, our children, and our friends.  If we want them to be open with all the good and positive energy flowing back and forth, we must
do due diligence to make sure they're always in good working order.  If I take away anything positive from this experience, it will be that I'll be checking my windows everyday. 

1 comment:

Myra.binstock@gmail.com said...

Paula: So beautifully said. We all have difficult relationships. How we manage them is the challenge we are faced with. My mother, too, was a negative woman who only lived for my brother and my dad when he was alive. She and I never got along. She wanted my brother, Joel, all to herself. We (I) tried to deal with her quirks because she was a child of the Holocaust; and while she was safe in America, she had siblings whose deaths she heard about constantly. She had 9 or 10 siblings left in Estonia. When we grew up, my brother and I hardly knew each other; and for 18 years he refused to speak to me because I had called him "kiddo" one day. I'm four years older than he. Well, two years ago, a friend of his contacted me and said that Joel was in the hospital and that I should stop in to visit him. I immediately went over, not knowing what his reaction would be. He welcomed me with open arms and I've been taking care of him ever since. I had to put him in an assisted living facility because he has congestive heart failure and other ailments and is truly not capable of taking care of himself. He never married. There is so much more to the story, but what I wanted to leave you with is that your mother's legacy may not lie with her. It may come from another situation or relative who needs you and who you can tend to. You are a very gracious person and filled with caring and love. Someone who can appreciate you and blossom with your care is out there.

Myra